Sunday, June 10, 2012

I'm Still Looking For YOU!

Do you know any strong strokies aka young stroke survivors?

I'm looking for them to tell their story and be a part of a young stroke survivor community! Share your story! Comment on this post to get in touch with me.


  1. I don't know if 35 counts as young, but that was my age when I had a hemorrhagic stroke. The left side of my body got paralysed 3,5 years ago and right now I'm going through the spastic stage of recovery, it's awful. I used to be sexy in high heels and now I'm wearing orthopedic shoes and sometimes I even use a cane. I'm so ashamed that I often choose to hide. Inside the house my walk is quite good. I try to keep focusing on that. I'm physically able to do it, but when I get anxious I get stuck and can't move anymore. I'm reading a lot of books by Louise Hay and people from the New Thought movement, because in my case the mind-body connection is very obvious. I'm also trying to see what happened to me as an opportunity for personal development. Before my brain exploded my life was about diet and exercise and being sexy.

  2. It most definitely counts Tamara! Please don't hide. You're a survivor. I know sometimes it's easier said than done. Recovery is life long. I would suggest reading My Stroke of Insight by Jill Bolte Taylor. She is very inspirational. Have you asked your doctor about Botox as a form of treatment for your spasms? There have been cases of that easing the pain and discomfort that comes along with recovery. Please definitely ask.

    The discovery of who you are now is a gift. You say that prior to your stroke, life was about diet, exercise and being sexy. What is it about now? Don't let the stroke define you, then it wins. You've been given a gift of re-birth. I am definitely a different person than who I was before my stroke and I think I view the world now with new eyes. Personal development will come, I promise.

    Also, who said you can't be sexy in orthopedic shoes?! If I had to use a cane, I would pimp that sucker out! Throw some flames on there a la Gregory House :) I went through the same thing but not to the extent of what you are going through. The blood thinners changed my face and the curl to my hair. I tried to do everything to make myself into my "old self". When that didn't work, I finally had to lay that to rest and embrace what I had in front of me. Try and embrace what you have now. If you ever want to chat further, please email me!

    I'm definitely going to look up books by Louise Hay. I'm very curious about this New Thought Movement.

    Be well.

  3. I've already had Botox in my lower left leg to stop my toes from clawing, but it only works for a short while. On August 8 I will be getting some more Botox. Unfortunately my anxiety always overwrites it. I try to do what Louise Hay says: Let go what I can't use anymore, what doesn't serve me anymore. I KNOW this, but I have a hard time FEELING it.
    I actually feel the same way, that I've gotten a second chance at life, and it's getting better. I'm glad I don't have to live up anymore to that sexy image I created, it was exhausting. I'll send you an e-mail with a picture of my shoes.

  4. Hi, I stumbled upon your page while looking for info about pregnancy after stroke. I'm 29 years old and had a stroke in May this year. I have no conclusive diagnostics until now and under ASS 100g and statin 10.

  5. Hi Farah,

    I'm so sorry to hear about your stroke. I wish you a speedy recovery. If you need any advice or need an ear, email me

  6. I just came across your blog. I am about a year and a half out from a stroke I had as a result of a deep brain surgery for cavernous angioma. It has been a long road, but I am much better now. I still have some deficits, but fatigue is the most debilitating for me at this point.

  7. Hi Survivor! If you need support, please email me. The fatigue will get better, I promise, it's just a slow road but very rewarding.

  8. I got hemorrhahic stroke whilst 20weeks pregnand and 33 years of age and a mum to a 9 year old girl.I got left side paralyzed and 1/4th blind.I weighed just 51 kilos,been vegetarian for 20years,no smoking,no health issues,exept asthma and Hypothyroidism,migrene few times..Dispite hardships I got a healthy baby girl.Soon one year after my stroke.It is hard to find like minded people,who knows how I feel,no healthy person can understand truly.But I have to say my spouse is great and helps me to deal hardships.I go to physiotherapy once a week and have developed a lot,I think the hardest is the mental side of something so serious than a stroke.I am now 34,love my Family,I know I'm very very lucky,there were some real sick people at my neuro unit,thoughts of them haunt me,I wonder did they make it or not..Sorry my English isn't the best,I live in Finland.I don't know anyone as 'young' as myself having a stroke,I have only met old people or obese people.My biggest problem at the moment is the pain I'm having on my toes,wearing shoes exept my winter boots is agony.

  9. Hello! I'm sorry you are having pain in your toes. Water therapy is supposed to soothe it. Have you tried rubbing them with menthol or applying heat for relief? I'm so happy you got in touch with me. I struggled with that too. Thinking about what happened to the people that were in the stroke unit with me. I thank God that I am still here and pray for those who were with me when I was in the hospital. How is healthcare in Finland? Are you able to do physical therapy? Please keep in touch!

  10. Hi,I'm sorry it took so long to reply..
    I found out that I am 25% blind, really my Doc was shoked they didn't found that out sooner, although I complained that my world looks some how twisted and I can't comprihent distances anymore..
    Healthcare is rather good, I have still bills from my Hospital stay along with giving birth bills,alltogether about 500 US dollars but I pay them monthly bit by bit.
    Hospital did many mistakes caring me, like Doctors didn't believe I have a stroke, I had to fight in real lousy condition to get scans done,the I had to fight to get my physiotherapy ect. I go to physio now once a week and have improved along with everything I do at home,housework,kids,walks, ect. Now I am fighting to get income. Gov has hard policies who gets sickness pension. I applied for a year, but haven't got reply yet. This stresses me, even if I get it, that money is not much, about 700US dollars per month and my country is one of the most expensive with high taxing,high food pricing, gas, everything..I am so glad to know you, often it feels only grannies can relate to this ;D E-mail me if you want to : I send pics of me and my family! Take care and be strong <3

  11. I had a stroke last year at the age of 40.

    1. Hi Sharon! How are you feeling? How has recovery been for you? Please email me if you ever need a strokie to talk to.

  12. Heyy! I had a stroke at 23. Ischemic stroke caused my holes in my heart. Had to get heart surgery to close those holes. Your story is extremely inspiring and so glad they are more young strokies out there!!

    more details on my stroke:


    stay strong girl.

  13. Lauren! It is so wonderful to meet you. Thank you for being such a positive force for our community. I love that you have such a great outlook on your experience even though it sucked, there is still a light that comes from this stroke. I posted about you on my blog. I hope that's alright. Please keep in touch.

  14. One risk factor for stroke is a heart disorder. Some heart problems such as coronary heart disease, irregular heartbeat, heart valve defects or enlarged heart chambers is a risk factor of stroke.

  15. Hi Eljon

    Only found your blog today, I had my stroke just over 2 years ago at the age of 38. I wish I'd found it at the time as your fears resonates with me. I am forever grateful for the people - my family and friends who rallied around me and got me through it. I had faith before I had the stroke but it is stronger now. My stroke journey was and is a very humbling experience and although I would not chose this path it is one that I am on and every day is a bonus, I sometimes walk down the street and remember this could have so much worse!!

    I just wish I did not feel so tired all the time but I am alive!

    Good luck with your journey!

  16. Hi Deirdre!

    So wonderful to meet you. Thank you for reaching out. How did you have your stroke?

  17. Hey Eljon,
    I am Breanna, a young women from Portland, OR. I randomly came across your blog when trying to research if it's risky to have children after a stroke. I recently (back in April) had a stroke (diagnosed with dural venous sinus thrombosis) at only 23 years old. It was a rare complication from my ulcerative colitis (inflammatory bowel disease) during which I didn't know I had at the time, so all of this has been a lot to handle. Hope you are doing well!

  18. Suffering from chronic disease(stroke) is a Terrible Experience that i would not even wish it for my enemy.
    it was terrible for my dad ,things where very bad , till i meet a herbal doctor called Dr idoko. I tried to get solution for my dad to no avail,i even tried herbs from some Herbal Doctors by communicating with them but he never received cure.Just about few month ago i saw a recent post of how Dr IDOKO herbs has cured so many people and that he is a honest man to work with in the procedures on finding a cure. Then i contacted him in trial and the Herbs he Sent me got my dad Cured after two weeks.I am so happy that his is ok advice to the world please don't mind the scientific research and becareful as well, only try and also believe is herbal medicine cause most disease can be cure with is the dr,email ;

    best wishes search to get healing.