Birthday Post

Happy to be here on this day and grateful for good health, good friends and the wonderful people I've met throughout this experience.
Looking forward to eating a piece of cake and savoring the icing that is life.
:)

What Was I Like?

I don't know why this popped into my mind the other day but I was trying to remember the days after I got out of the hospital and what I was like at home. What did I do? Did I sleep a lot? Did I eat? How did I walk, or try to walk? Sometimes my memories get cloudy and I can't recall certain details. I like to play a game where I see how far back I can remember. Sometimes things are crystal clear, other times, not so much.
I asked my boyfriend about what he remembers from the days after I got home. It's crazy to think that certain things are gone but again, you all know I am a firm believer of well if it's not there anymore, embrace that. Some days I wish I could have taped myself and some of the conversations I had with myself, other times, not so much. I think they would scare me today in the way that some old pictures the first 6 months post stroke do. Even though I want to remember, I don't want to remember all that. It still scares me.
Today, the weather in NY reflects my brain today, cloudy and grey. Hoping for brighter skies tomorrow.

Be well!

When People Think It's Your Fault

Last night, a friend and I were talking about strokes. I mentioned someone who reached out to me who had one a few years back and the immediate reaction was: What was she doing wrong? This made me really upset. Lately, I've found that the immediate reaction to a young person having a stroke is well what did this person do wrong? Why would that be the first thing that enters your mind? Is it because the person is young? Is it because you don't see the face of stroke as the face of a young person?

As a survivor, I know this can be upsetting but the key to this train of thought is to learn from it. How can we change the minds of those who were raised with this mentality? Education is one way. Remove the stereotype or at least try to make a dent.

Last year, I saw so many advertisements on stroke and young people having stroke. I feel like they came and went and were maybe just put up for a second to quell the needs of folks like myself who have voiced an opinion. I can only hope that educating young people in Health class in High Schools will pave the way. Stroke should be part of the conversation there, not only as a health risk for their parents, but as one for themselves. With strokes on the rise for women, especially those on the pill, education has to start in the classroom for girls on the cusp of becoming sexually active. Jumping the gun? No, just preparing the youth so they can have the resources and education they need if they are ever faced with that situation. Well, there's a good idea. Who can I talk to about instituting that?

Friends Finally Meet: Meet Carrington

Since I've started blogging almost 5 years ago (Wow!), I've had the opportunity to converse via email and sometimes phone, with brave strokies from around the world. It is a privilege and a blessing to be able to connect with these wonderful inspiring individuals and I can't tell you how much they have taught me. Despite going through 1 stroke or FOUR (yes, four), they've carried themselves with an incredible grace and good nature that folks who haven't gone through a medical condition don't seem to possess. I am continuously floored by their bravery and hopeful spirit especially on days when I am not feeling my best.
I had my first email exchange with the beautiful Carrington in 2013. She had 4 strokes on the left side of her brain. I have officially nicknamed her badass. Her doctors didn't recognize this at first and sent her home instead of admitting her. Her story echoes so many of ours. Being young strokies, doctors fail to recognize signs in us. It's one of the things I still get mad at and so does Carrington. We texted, we emailed but never met since Carrington doesn't live in NY but then last week, I got an email from her saying she was going to be in the city with her husband and wanted to meet.
You guys, I don't get thrilled by just anything but the prospect of getting to meet another young strokie, especially one who I had been in touch with for a year, made me grin from ear to ear. I can't explain it but there is an indescribable bond I felt when I met her. We both had tears in our eyes and couldn't stop talking. Apologies go out to her dear husband who sat by very patiently while we talked a mile a minute about blood thinners, shots, numbness and our love of liquor. From the picture on the right, you would think we both won the lottery haha. She is hugging me with her dominant arm and I am hugging her with my dominant arm. These small little jokes are just a few things that made us laugh in our short time together. Words can't express how much this meeting meant to me. I am so grateful I got to meet her in person. She's just as beautiful outside as she is inside.
Carrington is almost two years into her recovery and is still on the hunt for what caused her strokes. If anyone has a stellar neurologist they would recommend in the DC area, please let me know!
Be well!

Health Insurance Surprise!

Today feels like Christmas. I just found out that my health insurance carrier (that I pay $658.53 a month for!!) just added my old PCP to my plan. YES!! I can go back to her! You would think I just won the lottery. No more going to an old dirty office where I feel like I might catch something. No more getting to know another doctor. It's like dating isn't it? I can go to someone who is familiar with my history and will know how to treat me instead of staring at me awkwardly asking a barrage of questions that have nothing to do with why I came in.

YAY WHAT A GREAT DAY!

*UPDATE
Empire Blue Cross Blue Shield IS THE WORST HEALTH CARE PROVIDER Ever.
I have been trying to get in touch with a supervisor or get a straight answer from this insurance company for weeks now and I am getting conflicting reports. Yes your doctor is in network. No she's not in network. Which is it?
I'm on twitter now trying to get in touch with someone to help. This shouldn't be this hard.
I even sent a screenshot showing that they are saying my doc is in network and they're still telling me she's not. So why do you have this as an option?
Get it together, seriously.

R.I.P. Stuart Scott

"When you die, it does not mean that you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live."
-Stuart Scott

Words that should echo with us every day.

Happy New Year!

By now, your hangover is gone, you're starting to get reacquainted with your liver and trying to stay good with those resolutions you made a few days ago. For me, my resolutions remain the same and they will until they come to fruition. Every year, I set large goals. I might complete some of them, to complete all of them would be impossible BUT I do get closer to them becoming a reality.

This year, let's not put unnecessary stress on ourselves. We all know what stress leads to, right? Can we all make a pact to be good to ourselves? I am guilty of not doing this. I suck. Truly. I overbook myself. I try to SQUEEEEEZE every last drop out of every single day and write and work like it's my last day on this earth and I can't do that this year. Towards the end of 2014, I found myself slipping into old habits like I did pre-stroke and if there's one thing that experience taught me it's to listen to your body, so I'm listening. I'm taking me time.

I hope you have an amazing year filled with good health and the know to listen to your body when it speaks to you. We all have that gift of hearing our body speak to us but the voice can sometimes be low and get lost in our lives. Shhh, listen this year.